GBS...One Man's Journey

I'm hoping to get GBS some national attention in the coming months. I happen to know a nationally syndicated radio talk show host, and I am thinking about approaching him about an interview spot. In the mean time, I recieved some materials to give to the hospital ERs so that the docs will be better able to recognize GBS when they see it. All research into this matter shows that the faster a patient can get treatment the better (and faster) their recovery is. Cross your fingers, hopefully in the near future we can get our cause into the national spotlight.

It's an amazing thing this medical technology. I was diagnosed with sleep apnea, and in the process, came down with another case of pneumonia. This time they believe it was because of inhaling the byproduct of acid reflux. After much debate about doing another treacheostomy they (thank God) decided on trying out another stomach pill. It seems I am on so many different pills that it's creating a sort of evil witches brew in my stomach causing a great deal of acid. So, the solution seems to be taking a combination of prevacid and an anti-neausea medication. I guess the worst part about the whole experience (besides being in the hospital yet again) was facing the possibility of going back on the vent again at night (every night) and, having that big stinkin' whole in my neck again (the scar is bad enough). Needless to say, the possibility brought back many bad memories. If any other GBS'ers have had this problem, please leave a comment.